About

Support, awareness, and fundraising is our mission!

Support

Our support arm comes in the form of the #IBDSuperHeroes Facebook group. Whether you want to ask questions, have a rant about things other people just don't understand, or simply want a chat, the #IBDSuperHeroes team and group members are here for you! 👫👭

We try to run at least a couple of events each year, where people with IBD can meet in-person. Plus, we have regular online events for members such as weekly weekend catch-ups, and a film club📽!

The #IBDSuperHeroes team exist to manage the day to day running of the group, ensuring that your time with us is enjoyable and that your support needs are met. Whether that be answering your questions, pointing you in the right direction of information, giving you gentle virtual hugs, or simply bumping your post to give other people the opportunity to help that may have missed it.

We also share the tasks needed for our awareness-raising efforts, such as daily social media engagement, video editing and event planning! The team behind the scenes are;

Sahara Fleetwood-Beresford

Awareness

We want to raise awareness of Inflammatory Bowel Disease and stamp out the stigma related to it, but we need you to help us to do this!

Raise awareness of Crohn's Disease and Ulcerative Colitis by adding our frame to your social media profile pictures!
Tag our Facebook page in your awareness posts on Facebook, or use hashtag #IBDSuperHeroes in your Twitter and Instagram posts. We will find and share some of these! Note: If your posts are not set to public, we cannot share them!

Buy #IBDSuperHeroes branded merchandise! For everything from wristbands and clothing👕 to stationery🖉 or a jacket for your dog, visit our shop! ALL profits fund IBD research via Cure Crohn's Colitis.

Read, share, or contribute to our IBD stories!

👍Follow us on social media and share our frequent awareness posts.


Fundraising

Our main goal is to find a cure for Crohn's Disease and Ulcerative Colitis.

ALL money raised by #IBDSuperHeroes is invested into patient-centric research, to improve the lives of those with IBD and ultimately, to find a cure. 🧫

We are fundraising on behalf of Cure Crohn’s Colitis, who invest 100% of donations into research projects throughout the UK. They work tirelessly, and for free, because they have all been affected by IBD in some way; personally, professionally, or have watched someone they care about fight this debilitating, and so far INCURABLE disease.

“Cure Crohn’s Colitis has the sole objective of raising money to help fund research to cure Inflammatory Bowel Diseases, Crohn's Disease and Ulcerative Colitis. Every penny we raise goes directly to funding these research projects. All of our members are unpaid volunteers who pay for any admin costs out of their own pocket.”

Together we are stronger.
Together we can fight harder.
Together – we CAN be HEROES!


You can donate to #IBDSuperHeroes via JustGiving here 💸

If you are running an independent event/fundraiser for #IBDSuperHeroes and would like our support, just let us know so that we can promote it. Don't forget to join our JustGiving team page! If you have already run an event and collected money offline, when you upload it to our JustGiving page, please put your name and the fundraiser name on the donation and drop us a message on Facebook so we can give you a shout out on our social media accounts!

Never miss out on upcoming awareness projects - sign up for our newsletter. Don't forget to add ibdsuperheroes@gmail.com to your 'safe senders' list, or we may end up in your junk folder!

Check out upcoming events and awareness projects past and present on our news page.

If you have a passion for raising funds and awareness for IBD then please do join us! After all... not all superheroes wear capes.





5 comments:

  1. I Just found this site thanks to the comical colon. I have celiac and microscopic colitis. I am looking forward to reading more of this site.

    ReplyDelete
    Replies
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      ~ Sahara, #IBDSuperHeroes founder xoxox

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