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#IBDSuperHeroes - Fighting to Cure Crohn's and Colitis

#IBDSuperHeroes - Fighting to Cure Crohn's and Colitis

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Showing posts from August, 2023

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My journey battling intestinal strictures (narrowings)

Posted by Roger on August 04, 2023

#IBDSuperHeroes Awareness blog Colitis Crohn's Crohn's Disease IBD IBDSuperHeroes Inflammatory Bowel Disease Inflammatory Bowel Disease Your IBD Stories

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Popular posts

Frequently asked questions and IBD myths

I'm sure some people will still not believe a few of our facts, regardless of the purpose of this page being to only state facts. If you do want to check for yourself, please ensure your sources are reliable and not a random forum post/blog, which is based on opinion that absolutely anyone could write. Here is a list of reliable resources for you to peruse at your leisure should you have any queries. #IBDSuperHeroes is dedicated to sharing factual information. All facts are checked more than once to ensure their reliability. For more information about Crohn’s Disease and Ulcerative Colitis, visit the #IBDSuperHeroes “ About IBD ” page. IBD is not like, or in any way related to, IBS The conditions and treatments are completely different. Irritable Bowel Syndrome (IBS) is a common condition that affects the digestive system without any evidence of underlying damage. Inflammatory Bowel Disease (IBD) is an immune-mediated disease that attacks healthy cells in th

My journey battling intestinal strictures (narrowings)

When you're living with inflammatory bowel disease (IBD), it's crazy how long you accept things as your normal, or new normal, so I've probably been experiencing 'changes' for possibly over 3 years. These changes, it turns out, are due to intestinal strictures (narrowings). We can’t be sure whether I have them because of my Crohn’s disease or from previous surgeries. I saw my consultant in London in August 2021. I was referred to a dietitian for advice on what would be best for me health-wise, and that I can also tolerate with my strictures (they can be very painful). I had my bile acid malabsorption (BAM) medication increased and had an MRI planned to look at my strictures to see if dilation was a possibility. I was also referred to a hospital in Manchester, where we'd moved to. Three strictures were picked up on the MRI scan I had around the end of 2021. Dilation procedure I knew surgery was on the table, but my consultant, now in Manchester, thought try

Buy #IBDSuperHeroes wristbands!

Welcome to the #IBDSuperHeroes awareness wristband purchasing area! Wristbands are available in adult and youth sizes; Adult - 8 inches Youth - 7 inches Wristbands are £2.00 each PLUS; £1.00 for processing and postage in the UK £2.75 for processing and postage outside of the UK You can order up to 5 bands before your postage price increases. ALL profits fund inflammatory bowel disease research . How to order Send us a message on Facebook or Instagram , including; Your name Full postal address How many bands and of which size You will then receive payment instructions before your bands are dispatched. Thank you for supporting #IBDSuperHeroes!!

#IBDSuperHeroes – fighting to cure Crohn’s and Colitis!

Money raised by #IBDSuperHeroes is solely invested in funding for Inflammatory Bowel Disease research. The project is run by the group members, involving them in every aspect of the fundraising and helping us drive our mission forward. Every quarter there will be a pinned post (pinned at the top of the group) for members to add their fundraising and awareness raising ideas to. At the end of each quarter we will have a poll which members will then vote on, the winner will be announced and the group members can then have as much or as little involvement as they like in the planning and coordination. We are fundraising on behalf of a Scottish charity which invests 100% of their donations to medical research THROUGHOUT THE UK. The charity is relatively small so the funds will make a huge difference to them! We hope you'll help us be the big hearts that fight for the little guys! Please take some time to check out the charity here; Cure Crohn’s and Colitis “Cure Cro

Unveiling the Invisible Struggles: Living with Crohn’s Disease and Ulcerative Colitis

Living with Crohn's disease or ulcerative colitis goes beyond the visible symptoms. It's a daily battle with a myriad of challenges that affect not only the body but the overall quality of life. In a recent inquiry within the IBDSuperHeroes community , members shared their experiences on the worst aspects of living with these inflammatory bowel diseases. Here are their unfiltered responses: Rene Blakely: The Loss of Weight “Loss of appetite and weight loss... I was not prepared to go from over 250 lbs to barely 90 lbs, and I can literally go 3 days with nothing to eat and not even notice, not one bit hungry... I look like a walking skeleton, I am weak, and the fatigue is overwhelming!! Never realized how important good nutrition was to keeping a body working right. Brain fog, muscle cramps, and so on all caused by poor nutrition.” Rene sheds light on the physical toll of Crohn's disease and ulcerative colitis, emphasizing the drastic impact on weight and the resulting

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